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This organization is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law.
Big ideas for a
rare world
The Possibility Club is a community helping people living with Myhre syndrome, an extremely rare genetic condition.
You don’t have to know someone with Myhre syndrome to make a difference.
You just have to believe everyone deserves better care today, with a future full of possibilities.
The Possibility Club brings together families, friends, clinicians, and supporters who believe in big ideas for a rare world. Every gift, of any size, makes you a member, and 2026 is our founding year.
About our mission
The Myhre Syndrome Foundation unites and supports patients and families through community, education, and shared knowledge.
We fund research and connect clinicians and scientists across borders to accelerate the science toward treatments, with patients and families at the center of everything we do.