No One Should Face FTD Alone
AFTD's HelpLine provides guidance, support, and connection for families navigating FTD.
For too many, facing FTD is confusing and isolating. The HelpLine ensures no one faces it alone.
Your support helps ensure trained social workers and a genetic counselor are available to help families navigate care, cope with grief, manage challenging behaviors, and connect with vital resources.
The calls keep coming. Will you help us answer them?
Your gift today ensures someone is there when families reach out.
Jeanne's Story
Ralph and Jeanne Cestone
“I felt like they saved my life when I was drowning.”
In 2023, Jeanne’s husband was diagnosed with behavioral variant FTD (bvFTD). Having never heard of the disease, she had no idea what to do. When Jeanne first reached out to the HelpLine, she was at a breaking point — trying to keep her job, their only source of income, while managing Ralph's care, which he was very resistant to.
“The AFTD HelpLine pointed me to information and resources that became the foundation for figuring out this new world we were living in. More importantly, they provided a kind and understanding voice when everything around me felt aggressive and confusing.”
Demand for Help is Growing
4,930
HelpLine contacts in the past year
19%
increase year over year
Every call represents someone searching for answers — and a moment where support can make a difference.
The need for HelpLine services continues to grow as more families turn to AFTD for guidance.
Your gift helps ensure families receive support when they need it most.
Together, we are improving lives today and working toward a future free of FTD.