Create a Fundraiser for Nemaline Myopathy Research
Help change lives by setting up a fundraiser to fund treatments for Nemaline Myopathy! 100% of the donations you collect go directly to NM research.
About A Foundation Building Strength
Founded in 2008, A Foundation Building Strength is a nonprofit organization dedicated to the mission of finding treatments for the rare congenital muscle disease Nemaline Myopathy (NM).
NM is a neuromuscular genetic disorder primarily affecting skeletal muscles, causing weakness and impacting movement. This weakness is often most pronounced in the face, neck, and core muscles.
NM can also affect other organs and body systems, potentially causing difficulties with breathing, eating, and speech, as well as bone and joint deformities. The severity of NM varies greatly, but it's important to note that it does not affect cognitive function.
Our Mission
A Foundation Building Strength’s mission is to find treatments for Nemaline Myopathy (NM).
AFBS works to address issues for our NM families from all angles, including advancing research, providing information about care, offering community support and ways to connect, and creating opportunities for in-person interaction and education at conferences.
Our Vision
Our vision is to be the driving force behind groundbreaking research and effective treatments for Nemaline Myopathy (NM), while providing vital support and resources to individuals and families affected by the disease.
We are building a united global community of researchers, clinicians, and advocates dedicated to accelerating innovation, improving care, and empowering the NM community.
Our ultimate goal is to transform lives, ensuring that hope, treatment, and high-quality care are accessible to all.
Our Commitment
AFBS operates as a 501(c)(3) non-profit organization sustained by the collective generosity of a global community.
Because the Board of Directors and major donors cover 100% of all overhead costs, every additional dollar donated is directed toward vital research.
This unique financial model has allowed the foundation to accelerate its mission, bringing the community closer to effective treatments for Nemaline Myopathy than ever before.