Make a Difference...One Share at a Time!
Help raise awareness and fund research for the rare neuromuscular disease Nemaline Myopathy!
About the NM Awareness Share-A-Thon
The NM Awareness Share-A-Thon is an online fundraising event designed to spread awareness about the rare neuromuscular disease Nemaline Myopathy across social media, while simultaneously raising crucial funds for research into much-needed treatments.
Participation is easy, and you can contribute at whatever level feels right for you, from creating your own fundraising page, to making a donation, to simply sharing our social media posts!
How to Participate
1. Make a Fundraising Page - Starting May 1st and all through the month of May, create your own Share-A-Thon Fundraising Page by clicking the "Start Your Fundrasier" button above!
2. Ask Your Family & Friends to Donate - Make a donation and/or share your fundraiser with your network. Tell them about Nemaline Myopathy how they can help you raise awareness and donations to fund AFBS's mission to find effective treatments for this as yet untreatable disease!
3. Share, Share, Share! - From May 18 - 31, AFBS will be sharing special Share-A-Thon posts on Facebook and Instagram including facts about Nemaline Myopathy and information on the important work that A Foundation Building Strength is doing to develop effective treatments and create a brighter future for those affected by NM.
We're asking that you help us create a tidal wave of awareness by sharing these posts AND asking your network to not only donate, but share these posts with their friends and family, too! When our social media shares across Instagram and Facebook reach 500 shares, it will trigger a matching gift from a generous donor that will DOUBLE the impact of your donations, up to $25,000!
Meet Our Featured Fundraisers!
Featured Fundraiser
More info coming soon!
Featured Fundraiser
More info coming soon!
About A Foundation Building Strength
Founded in 2008, A Foundation Building Strength is a nonprofit organization dedicated to the mission of finding treatments for the rare congenital muscle disease Nemaline Myopathy (NM).
NM is a neuromuscular genetic disorder primarily affecting skeletal muscles, causing weakness and impacting movement. This weakness is often most pronounced in the face, neck, and core muscles.
NM can also affect other organs and body systems, potentially causing difficulties with breathing, eating, and speech, as well as bone and joint deformities. The severity of NM varies greatly, but it's important to note that it does not affect cognitive function.